So this week we went for our eldest's forth diabetic check up. Good to start the year with the first one done and good that she didn't have to miss any more school to go to it.
We have to go to the local hospital so they can check all her levels and discuss any issues we have a few times a year. Normally I think it's a time when they get people to adjust levels and ratios of insulin, but we've been adjusting them anyway (we were told we had a good understanding and to do it), so for us it's normally justifying why we changed them when we did.
I try to make it into something to look forward to rather than dread, so we went out for a little daddy daughter date first - Burger Shop in Hereford never disappoints. The first time I think I've got her an adult sized meal in a restaurant as well! Shows how quickly she's growing up.
The checks went fine, but once a year they need to take bloods (to check for kidney damage and for potential gluten intolerance - We all fear that one I can tell you). Taking blood made her feel a bit faint though and we ended up staying for quite a while until she felt better. We were late being seen anyway, so with this as well I was glad I put plenty on the car for parking, we left home at a round 11.30 and didn't get back until 5.15!
What was nice was that although the last couple of weeks have been terrible as far as levels are concerned - too many carbs are around in unpredictable amounts and chocolate seems to make blood glucose levels do crazy things. But they told us that if this was what we thought were bad levels then we were doing really well. I explained what I'd done about changing breakfast to get rid of the morning spike and how we'd increased the slow acting insulin to try to keep the average somewhere in the middle. The new consultant was fine about everything, telling us to look at a few other things, but as always to do changes to ratios slowly and to look at the graphs.
There are more things I want to do to help. I often cook low carb dinners now, but I'd like to get going with sourdough again as I've read it supposed to be better for diabetics. Lots of little changes add up and as I've said before they do us all some good really.
And of course I'd like her to get on a pump and a closed loop system, but she still seems a little unwilling at the moment.
One thing that is mad is the disability benefit/allowance she/we are now entitled to, this is to help cover things like all the hypo treatments, time off work to take her to things like appointments, extra bits that aren't covered by the NHS (silly things like stickers for CGM) etc, we still haven't seen a penny. Now for us it's fine, we're financially stable and always run with a little behind us, but for some families it must make it so tough. Let alone you have to reapply for it every three years - for a permanent disability - and the paper work takes hours to complete, but then you have to wait well over half a year before you'll see a single penny, after waiting the first three months to be able to apply in the first place. Fine that they back date it to the date that you apply, but only fine if you can survive until that point. We're lucky we can, but the government doesn't make it easy for people.
Anyway, another one ticked off. Soon it'll be a year gone and that seems crazy, I think we need to go out for it, not to celebrate it, but to show we won't be beat by it.